About Us - Heart Valve Voice US

Mission

Heart Valve Voice US is dedicated to transforming the way heart valve disease is recognized, diagnosed and treated – so that no patient is overlooked or left behind. By elevating awareness of the condition’s seriousness and championing early detection, we work to ensure every individual receives timely, effective care and the support they need to navigate their journey. We envision a future where people with heart valve disease not only live longer, but live fuller, healthier lives.

Should you want to get involved with Heart Valve Voice, please contact us at [email protected].

Read HVV US Terms of Use and Privacy Policy.

BOARD OF DIRECTORS

Teresa Wright-Johnson

Chair

Patient Advocate

Tina Sampath

Vice Chair

Chief Commercial Officer, Cumulus Neuroscience

Christina Rekash

Secretary

Patient

73b3eb3c-6506-496d-acaa-06609b90ae66-e1738622789420

Kathi Sapp

Treasurer

Executive Pastor of Operations, Meadowbrook Church

David Andelman

Board Member
Patient, Journalist

Aaron Horne, MD, MBA, MHS

Board Member

Structural and Interventional Cardiologist, Summit Health

Donald May

Board Member

Senior Vice President at Federation of American Hospitals

Elizabeth Perpetua, DNP, FACC

Board Member

Founder, Empath Health, Associate Editor Structural Heart, Adjunct Professor Seattle Pacific University

Mark Russo, MD

Board Member

Chief of Cardiac Surgery, Professor of Surgery, Director, Structural Heart Disease, Associate Professor of Surgery Rutgers Robert Wood Johnson Medical School

Vinod Thourani, MD

Board Member

Cardiovascular Surgeon Piedmont Healthcare, Professor of Cardiac Surgery Emory University School of Medicine

© 2020 | Kristina Sherk Photography | www.Kristinasherk.com

Kirsten Tullia, JD, MPH

Board Member

Senior Vice President, Payment and Health Care Delivery Policy and Head of Research at AdvaMed

STAFF

Karissa Charles

Executive Director

Berkeley Barnett

Director of Policy and Advocacy

Robyn Peacock

Director of Patient Engagement

Hannah Krauss

Program Coordinator

OUR SUPPORTERS

Heart Valve Voice US would like to thank the following organizations for their support of our work through grants or donations.

Abbott Laboratories
Alliance for Aging Research
Duke Clinical Research Institute
Edwards Lifesciences
Edwards Lifesciences Foundation
Patient-Centered Outcomes Research Institute (PCORI)

Heart Valve Voice US is a partner with RTI International and the Food and Drug Administration to conduct a study supported under the Broad Agency Announcement titled Incorporating Patients’ Experiences and Prioritization of Treatment Outcomes into Regulatory Decision-Making for Medical Devices: Application of Patient Experience and Preference Research to Tricuspid Valve Disease (contract number 75F40123C00188) to ensure the outcomes are patient centered, clinically relevant, and of regulatory interest.

PARTNERSHIPS

4ddc2c_a70630bb8b334145805a4fca57dde942~mv2

IRS Form 990