What We Do
Heart Valve Voice US is a patient-led non-profit. We believe people with heart valve disease deserve a voice and a community. Our focus is on improving the diagnosis, treatment, and management of heart valve disease. We advocate for early detection, meaningful support, and timely access to appropriate treatment.
Patients with heart valve disease unnecessarily suffer from significant fear, anxiety and confusion about whether to seek treatment and how to do it as a result of a poorly coordinated healthcare system. The Heart Valve Patient Journey Report is a path to improving patient experience and outcomes by 2030.
Are you scheduled for heart valve replacement in the next few weeks? Wish you could talk to someone who has recently been there? We're here to offer patient to patient support to help you navigate the next steps! Join the My Valve My Voice Community.