Homepage - Heart Valve Voice US

What We Do

Heart Valve Voice US is a patient-led non-profit. We believe people with heart valve disease deserve a voice and a community. Our focus is on improving the diagnosis, treatment, and management of heart valve disease. We advocate for early detection, meaningful support, and timely access to appropriate treatment.

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HVV US Patient Journey Report

Patients with heart valve disease unnecessarily suffer from significant fear, anxiety and confusion about whether to seek treatment and how to do it as a result of a poorly coordinated healthcare system. The Heart Valve Patient Journey Report is a path to improving patient experience and outcomes by 2030.

Common

One out of eight people over the age of 75 suffers from moderate to severe heart valve disease, which involves damage to one or more of the heart’s valves. Many people with heart valve disease can live a normal life for many years, with little treatment. As with any heart condition there are potential complications, including heart failure, heart rhythm problems, death.

Serious

Studies show that outcomes for patients who aren’t treated for heart valve disease are significantly worse than for those that have undergone heart valve replacements. More than half of symptomatic patients with severe aortic stenosis die within two years of developing symptoms if not treated.

Treatable

Untreated valve disease is a barrier to active aging but conversely, early detection and timely treatment will increase longevity and quality of life. Patients with warning signs, like a heart murmur, should be referred to a cardiologist, who will perform additional examinations to confirm the diagnosis.

My Valve My Voice Online Community

Are you scheduled for heart valve replacement in the next few weeks? Wish you could talk to someone who has recently been there? We're here to offer patient to patient support to help you navigate the next steps! Join the My Valve My Voice Community.

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