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Heart Valve Voice USHeart Valve Voice US
  • About Us
    • Leadership
    • Our Supporters
    • IRS Form 990
  • Resources for Your Journey
    • What Is Heart Valve Disease?
  • News & Insights
    • HVV US Patient Journey Report
  • Policy Center
    • HVD Policy Task Force
  • Join Our Community
    • Sign Up For Our Mailing List
    • My Valve. My Voice.

Leadership

Home Leadership

BOARD OF DIRECTORS

Donnette Smith, Patient, Chair of the Board

Teresa Wright-Johnson, Patient, Vice Chair
Patient Advocate
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Sue Peschin, Secretary
President & CEO at Alliance for Aging Research
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Norm Linsky, Treasurer
Executive Director at the Pediatric and Congenital Interventional Cardiovascular Society
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Marilyn Serafini, Board Member/Care Partner
Director, Health Project, Bipartisan Policy Center
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Christina Rekash, Patient, Board Member
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David Andelman, Patient
Journalist
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Donald May, Board Member
Senior Vice President at Federation of American Hospitals
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Dr. Mark Russo, Board Member
Chief of Cardiac Surgery, Professor of Surgery, Director, Structural Heart Disease, Associate Professor of Surgery ​​Rutgers Robert Wood Johnson Medical School
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Dr. Vinod Thourani, Board Member
Cardiovascular Surgeon Piedmont Healthcare, Professor of Cardiac Surgery Emory University School of Medicine
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Dr. Wayne Batchelor, Board Member
Director of Interventional Heart Program, Research, and Innovation at Inova
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Elizabeth Perpetua, DNP, FACC, Board Member
Founder, Empath Health, Associate Editor Structural Heart, Adjunct Professor Seattle Pacific University
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Chandra Branham, Board Member
Vice President, Payment and Health Care Delivery Policy, AdvaMed
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STAFF

John Lewis, Executive Director

John joined Heart Valve Voice US in August 2019 with an extensive background in communications, patient advocacy, alliance development and non-profit management. Most recently, he headed his own health communications and advocacy consultancy, Intersect Strategies, LLC. Prior to this, for eight years he served in senior positions with the Association of Clinical Research Organizations where he led policy development, public affairs and government relations. Earlier in his career, he: was partner in a successful boutique public relations and advertising agency; directed marketing, public relations and investor relations for a technology start-up; and was marketing leader for a global clinical research organization.

He holds a Bachelor of Arts in Political Science from Duquesne University and a Master of Arts in Communication from American University.

Susan Strong, HVV Director of Communications and Patient Engagement
susan@HeartValveVoice-US.org

Susan Strong is the founding President and current Director of Patient Engagement for Heart Valve Voice US, the only patient-lead organization in the country that exclusively focuses on improving the diagnosis, treatment and management of heart valve disease.

A champion of patient advocacy and engagement, Susan serves as an AHA Heart Valve Ambassador, a member of the NQF Cardiology Standing Committee, and as a PCORI Ambassador. She has presented the patient perspective on panels at numerous professional conferences including ACC, TCT, TVT, SMDM, and NIH. With a keen focus on meaningful inclusion of patient stakeholders, Susan is passionate about improving patient experience and outcomes through collaborative partnerships in research, healthcare systems and industry.

With an extensive network of patient advocates and non-profit organizations, she collaborates with a wide range of stakeholders to help improve processes and policies that impact patient care.

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  • Heart Valve Voice US
  • 100 M Street SE 600 Washington, DC 20003
  • info@heartvalvevoice-us.org
  • https://www.heartvalvevoice-us.org