We know thinking that something may be wrong with your heart, or being diagnosed with heart valve disease, can be overwhelming. Likewise, the information you find online or through social media can be confusing. To help you cut through the clutter, Heart Valve Voice US has compiled the “best of” resources from our trusted partners.
These resources are meant to guide you through your journey, from first experiencing symptoms, through diagnosis, treatment and aftercare.
We have also gathered comprehensive directories of interventional cardiologists, surgeons and imaging professionals so you can search with confidence to find a local doctor. Unlike other online directories, these are not “pay to play.” Rather, we go directly to the source with leading medical societies like the Society for Cardiovascular Angiography & Interventions (SCAI), Society of Thoracic Surgeons (STS/CTS) and the American Society of Echocardiography (ASE) and the Association of Black Cardiologists (ABC).
Here you will find downloadable materials as well as useful links.
About Heart Valve Disease & Symptoms
- AHA Symptom Tracker
- Mended Hearts Guide
- About Heart Valve Disease
- AHA What is
Living with Heart Valve Disease
- HVV US Webinar: Living with Heart Valve Disease
- HVV US Webinar: Innovation and the Future of Heart Valve Disease
- New Options for Heart Valve Patients: What you should consider
- Moving Toward a Heart Team Approach; Information to Empower Patients
- Patient Perspective: Natalie’s Story
Find a Doctor/Specialist
- ABC Cardiologist finder
- SCAI- Find and Interventional Cardiologist
- CTS Surgeon Finder
- Find an Echocardiographer
Diagnosis with Echocardiogram
Preparing for Your Appointment or Procedure
- AHA AS Patient/Provider Discussion Guide
- AHA Pre-Surgery Checklist
- STS Patient Guide
- The Patient Guide to Heart, Lung, and Esophageal Surgery
After Your Procedure
- Aortic Stenosis Fact Sheet
- Aortic Stenosis Symptom Tracker
- Aortic Stenosis Patient/Provider Discussion Guide
- What is aortic stenosis?
- Life After TAVR Managing Uncertainty About My Valve’s Future
- I Was Told I Was Too Young for TAVR. Here’s Why I’m Glad I Pushed Back
- 7 Ways to Make Life a Little Easier Before and After TAVR
- 7 Top TAVR Questions Answered by Someone Who’s Been Through It
See below for links to other organizations with helpful resources.
- American Heart Association
- Association of Black Cardiologists, Inc.
- The Society for Cardiovascular Angiography and Interventions
- The Society of Thoracic Surgeons
Financial Support and Insurance Issues
The Patient Advocate Foundation is a national 501(c)3 organization that provides direct case management services and financial assistance to patients and caregivers. These include helping people navigate the health care system, working with health care providers, payers and employers to assure that patients have access to affordable care, financial and co-pay assistance and teaching self-advocacy to patients and caregivers.