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  • About Us
    • Leadership
    • Our Supporters
    • IRS Form 990
  • Resources for Your Journey
    • What Is Heart Valve Disease?
    • Understanding Your Echocardiogram Results
    • News & Insights
    • HVV US Patient Journey Report
  • Events
  • Advocacy
    • Patient Spotlight Series
    • Apply to Be a Patient Ambassador
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    • My Valve. My Voice.

Patient Perspective: Natalie’s Story (Gaithersburg, Maryland)

November 12, 2018 Patient Stories, Resource Library

Natalie Werber had a Transcatheter Aortic Valve Replacement in 2017

I was 79 and overweight. Surely, I thought, this was why I was less and less able to do even the simplest of things, like getting dressed in the morning, without getting more and more out of breath! I had always been active, but like many, I was accepting what I thought was the inevitable.

I already knew I had mild aortic stenosis, but I hadn’t believed that it would progress so quickly: My cardiologist had told me it could be 20 years before I needed a new heart valve. But, there I was, sitting in the coffee shop while my family enjoyed museums and other attractions on our vacation.

My diagnosis was a blow, since my mother had succumbed to aortic stenosis at age 93. And, as my symptoms progressed, and my cardiologist continued to suggest active monitoring, I knew it was time for a second opinion. The second set of doctors told me the time was now! Why wait until my heart was damaged before fixing it?

I was terrified of open heart surgery, so was delighted to learn that I might be a candidate for Transcatheter Aortic Valve Replacement (TAVR), which could deliver my new valve through an artery. I wouldn’t have to have my chest cracked, and that was important to me.

The day after my procedure I was released from the hospital. On the way home, we pulled into a rest stop for refreshments, and my daughters caught me on video dancing. I was a Facebook hit!

I’m glad we didn’t just sit and wait for that “one year before we need to do anything.” I’m glad I advocated for myself. Thanks to my new heart valve I’m back to my old “young” self. Whew!

Tags: Aortic StenosisAortic Valve
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