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  • About Us
  • Resources
  • Events
  • Advocacy
    • HVD Policy Task Force
    • #Ask4Echo Campaign
  • Join Our Community
    • Sign Up For Our Mailing List
    • My Valve. My Voice.
  • Share Your Story

Blog

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Karie Watson

Karie Watson

November 6, 2025

Can you share your experience with heart valve disease? My husband had a sudden experience on January 20, 2005, at...

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Tori Lungren

Tori Lungren

October 21, 2025

Can you share your experience with heart valve disease? My symptoms began subtly – persistent backaches that lasted over a...

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0

HVD Policy Task Force Comments on Section 232 Investigation on Imports of Personal Protective Equipment (PPE), Medical Consumables and Medical Equipment

October 16, 2025

Dear Secretary Lutnick and Members of the Bureau of Industry and Security: As members of the Heart Valve Disease Policy...

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0
Kim Klatt

Kim Klatt

July 23, 2025

Can you share your experience with heart valve disease? I was born with Tetralogy of Fallot, a congenital heart defect....

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0
Debra North

Debra North

May 23, 2025

Can you share your experience with heart valve disease? My story is quite convoluted! I was born with a congenital...

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0

HVD Policy Task Force Comments on CMS’s Proposed National Coverage Decision for T-TEER

May 12, 2025

Dear Administrator Oz, As members of the Heart Valve Disease Policy Task Force, a national group of 30 leaders including...

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0
Christine Rekash

Christine Rekash

April 28, 2025

Can you share your experience with heart valve disease? I am a survivor of heart valve disease. My journey began...

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0
Meghan Holmes

Meghan Holmes

April 9, 2025

Can you share your experience with heart valve disease? I was born with a unicuspid aortic valve defect. The murmur...

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1

Tina Sampath

February 27, 2025

Can you share your experience with heart valve disease?   I was diagnosed with mitral valve prolapse as a teenager; however...

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0

Teresa Wright-Johnson

February 27, 2025

Can you share your experience with heart valve disease? I was born with a heart murmur, and my parents quickly...

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0
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