WASHINGTON, DC – Heart Valve Voice-US (HVV-US), the nation’s leading nonprofit dedicated to supporting and advocating for patients with heart valve disease, announced new executive leadership as it reinvigorated its commitment to serving patients nationwide. Founded in 2014, after a brief period of reorganization this year, HVV-US is more dedicated than ever to providing crucial education, support, and advocacy for those affected by heart valve conditions.
Longtime patient advocate and non-profit manager Lindsay Videnieks has assumed the role of Interim Executive Director. Lindsay’s extensive experience in non-profit management and dedication to patient advocacy makes her ideally suited to lead Heart Valve Voice-US forward.
“I am honored to help lead Heart Valve Voice-US as we embark on this exciting journey of re-engagement,” said Videnieks. “Working collaboratively with the HVV-US executive board and longtime patient advocates such as Susan Strong, I’m proud to help the organization serve as a steadfast ally for patients, offering a platform for their voices to be heard and their needs addressed. To advance its mission, HVV will raise awareness, provide resources and drive positive change within the heart health community.”
HVV-US’s Board Chair Donnette Smith (herself a successfully treated heart valve disease patient) commented that “heart valve disease affects millions of people in the U.S. and globally. I know from personal experience how effective new treatments are in improving quality of life for so many. Our organization’s resurgence is a beacon of hope for patients and families navigating the challenges of this condition. With our renewed focus on patient education, empowerment and support, Heart Valve Voice will advocate tirelessly for expanded access to care for all who can benefit from such care.”
Heart Valve Voice-US is committed to empowering patients to become informed advocates for their own heart health, providing access to comprehensive information, support networks and expert guidance. The organization’s core programming includes initiatives such as the My Valve My Voice Patient Community, the #AskForEcho and Target Aortic Stenosis campaigns, and the Heart Valve Disease Policy Task Force. Under new executive leadership HVV is renewing its commitment to its crucial mission, aiming to create a brighter and healthier future for individuals living with heart valve disease.