• About Us
  • Resources for Your Journey
  • Events
  • Advocacy
    • HVD Policy Task Force
    • #Ask4Echo Campaign
  • Join Our Community
    • Sign Up For Our Mailing List
    • My Valve. My Voice.
  • Share Your Story
Heart Valve Voice USHeart Valve Voice US
  • About Us
  • Resources for Your Journey
  • Events
  • Advocacy
    • HVD Policy Task Force
    • #Ask4Echo Campaign
  • Join Our Community
    • Sign Up For Our Mailing List
    • My Valve. My Voice.
  • Share Your Story

Living with Heart Valve Disease

Home Living with Heart Valve Disease (Page 2)
Debra North

Debra North

May 23, 2025

Can you share your experience with heart valve disease? My story is quite convoluted! I was born with a congenital...

Christine Rekash

Christine Rekash

Apr 28, 2025

Can you share your experience with heart valve disease? I am a survivor of heart valve disease. My journey began...

Meghan Holmes

Meghan Holmes

Apr 9, 2025

Can you share your experience with heart valve disease? I was born with a unicuspid aortic valve defect. The murmur...

Teresa Wright-Johnson

Teresa Wright-Johnson

Feb 27, 2025

Can you share your experience with heart valve disease? I was born with a heart murmur, and my parents quickly...

Tina Sampath

Tina Sampath

Feb 27, 2025

Can you share your experience with heart valve disease? I was diagnosed with mitral valve prolapse as a teenager; however...

Katherine “Kathi” Sapp

Katherine “Kathi” Sapp

Feb 3, 2025

Can you share your experience with heart valve disease? I had little knowledge about heart valve disease until May 2021,...

Boots Knighton

Boots Knighton

Dec 3, 2024

Can you share your experience with heart valve disease? I was quite surprised by the diagnosis of a bicuspid aortic...

Pete Johnson

Pete Johnson

Oct 17, 2024

Can you share your experience with heart valve disease? It all started with what I thought was a routine check-up....

Mary Burrell

Mary Burrell

Sep 23, 2024

Can you share your experience with heart valve disease? My journey has been a wild ride of health challenges spanning...

Kimberly Goodloe

Aug 23, 2024

Can you share your experience with heart valve disease? A couple of years ago, I received a mechanical valve in...

  • 1
  • 2
  • 3

Contact Us

Please contact us with any questions or to get involved.

Send Message
Join the My Valve My Voice patient community Download the app
Sign Up for Our Mailing List
  • facebook
  • x
  • linkedin
  • youtube

© · Heart Valve Voice

Terms of Use
Privacy Policy

Website Management provided by Genacom

Contact Info

  • Heart Valve Voice US
  • 2020 K Street NW Suite 505 Washington, DC 20006
  • info@heartvalvevoice-us.org