Resource Library Archives - Heart Valve Voice US https://www.heartvalvevoice-us.org/category/resource-library/ Giving a voice to people with heart valve disease Mon, 16 Jun 2025 13:30:04 +0000 en-US hourly 1 https://wordpress.org/?v=6.9.4 https://www.heartvalvevoice-us.org/wp-content/uploads/2019/02/cropped-Favicon-32x32.png Resource Library Archives - Heart Valve Voice US https://www.heartvalvevoice-us.org/category/resource-library/ 32 32 Heart Valve Voice US and Alliance for Aging Research Partner to Support Heart Valve Disease Awareness Day https://www.heartvalvevoice-us.org/heart-valve-voice-us-and-alliance-for-aging-research-partner-to-support-heart-valve-disease-awareness-day/ Fri, 21 Feb 2025 16:19:39 +0000 https://www.heartvalvevoice-us.org/?p=11895 Heart Valve Voice-US is partnering with the Alliance for Aging Research for Heart Valve Disease Awareness Day, an initiative dedicated to increasing public awareness of heart valve disease and the importance of early detection and treatment. Heart valve disease affects millions of Americans, particularly older adults, and can lead to serious complications if left untreated. […]

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]]> Heart Valve Voice – US Announces New Chairwoman of the Board https://www.heartvalvevoice-us.org/heart-valve-voice-us-announces-new-chairwoman-of-the-board/ Tue, 18 Feb 2025 17:47:17 +0000 https://www.heartvalvevoice-us.org/?p=11885 Washington, DC – Heart Valve Voice-US announced today that Teresa Wright-Johnson will assume the role of Chair of the Board of Directors. As a congenital heart disease survivor and multiple sclerosis warrior, Teresa is passionate about advancing the mission of Heart Valve Voice US. Diversity, inclusion, and health equity are important to Teresa and her […]

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]]> Heart Valve Voice-US Announces New Executive Director https://www.heartvalvevoice-us.org/heart-valve-voice-us-announces-new-executive-director/ Mon, 07 Oct 2024 18:08:16 +0000 https://www.heartvalvevoice-us.org/?p=11793 WASHINGTON – Heart Halve Voice-US announced today that Karissa Charles will assume the role of Executive Director. Karissa’s nearly 10 years of experience in public health leadership, patient education, and program development make her well-suited to lead the organization.   Over the past year, Karissa served as Heart Valve Voice-US’s Director of Programming, where she […]

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]]> Heart Valve Voice Returns, Renewed and Serving Patients Once Again https://www.heartvalvevoice-us.org/heart-valve-voice-returns-renewed-and-serving-patients-once-again/ Fri, 08 Sep 2023 20:12:49 +0000 https://www.heartvalvevoice-us.org/?p=11452 WASHINGTON, DC – Heart Valve Voice-US (HVV-US), the nation’s leading nonprofit dedicated to supporting and advocating for patients with heart valve disease, announced new executive leadership as it reinvigorated its commitment to serving patients nationwide. Founded in 2014, after a brief period of reorganization this year, HVV-US is more dedicated than ever to providing crucial […]

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]]> HVV Comments on Medicare Program; Transitional Coverage for Emerging Technologies https://www.heartvalvevoice-us.org/hvv-comments-on-medicare-program-transitional-coverage-for-emerging-technologies/ Thu, 31 Aug 2023 20:29:57 +0000 https://www.heartvalvevoice-us.org/?p=11441 Heart Valve Voice submitted the following letter to CMS in response to their request for comments regarding their procedure used to provide transitional coverage for emerging technologies through the national coverage determination process. View the PDF here. August 28, 2023  The Honorable Chiquita Brooks-LaSure  Administrator  Centers for Medicare & Medicaid Services  7500 Security Boulevard  Baltimore, […]

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]]> Heart Valve Voice US Announces Major Initiatives for Valve Disease Day Including My Valve My Voice Community App, Caregiver Event https://www.heartvalvevoice-us.org/heart-valve-voice-us-announces-major-initiatives-for-valve-disease-day-including-my-valve-my-voice-community-app-caregiver-event/ Tue, 15 Feb 2022 20:09:06 +0000 https://www.heartvalvevoice-us.org/?p=11254 WASHINGTON, DC – February 15, 2022 – Heart Valve Voice US, a nonprofit patient advocacy organization, is launching a new mobile app for its popular My Valve My Voice patient community. The app, now available for iOS and Android users, is among several initiatives for American Heart Month and Valve Disease Day announced today by […]

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]]> Heart Valve Voice US Praises Nomination Of Dr. Robert Califf as FDA Commissioner https://www.heartvalvevoice-us.org/heart-valve-voice-us-praises-nomination-of-dr-robert-califf-as-fda-commissioner/ Fri, 12 Nov 2021 19:01:24 +0000 https://www.heartvalvevoice-us.org/?p=11029 Washington, DC/ November 12, 2021 — John Lewis, Executive Director of Heart Valve Voice US, issued the following statement regarding the nomination of Dr. Robert Califf to lead the Food and Drug Administration: “As an organization that advocates for heart valve patients, we see Dr. Califf, a cardiologist, as an excellent choice to again lead […]

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]]> 7 Top TAVR Questions Answered By Someone Who’s Been Through It https://www.heartvalvevoice-us.org/7-top-tavr-questions-answered-by-someone-whos-been-through-it/ Thu, 07 Oct 2021 14:35:05 +0000 https://www.heartvalvevoice-us.org/?p=10998 One thing was certain immediately after my diagnosis of severe aortic stenosis (AS): I had questions! What exactly is aortic stenosis? What are the treatments? How long is recovery? More questions surfaced in the hours and days after diagnosis. Still others occupied my thoughts at 2 AM while I was anxiously awaiting my valve replacement. […]

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]]> 7 Ways to Make Life a Little Easier Before and After TAVR https://www.heartvalvevoice-us.org/7-ways-to-make-life-a-little-easier-before-and-after-tavr/ Thu, 07 Oct 2021 14:32:59 +0000 https://www.heartvalvevoice-us.org/?p=10997 When I first learned I had severe aortic stenosis and the only treatment was a heart valve replacement, I was scared and overwhelmed. As a patient who has felt the jumble of feelings and questions myself, I hope sharing a few practical tips from my own experience will help you feel more confident and reassured […]

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]]> I Was Told I Was Too Young for TAVR. Here’s Why I’m Glad I Pushed Back. https://www.heartvalvevoice-us.org/i-was-told-i-was-too-young-for-tavr-heres-why-im-glad-i-pushed-back/ Thu, 07 Oct 2021 14:29:58 +0000 https://www.heartvalvevoice-us.org/?p=10996 I was only 49 when I was diagnosed with severe aortic stenosis, a condition where the aortic valve doesn’t open fully, restricting blood flow from the heart. Most people with that diagnosis are older than 65, but high dose radiation to treat Hodgkin’s lymphoma in my teens accelerated the development of the condition. I was […]

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