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Heart Valve Voice USHeart Valve Voice US
  • About Us
    • Leadership
    • Our Supporters
    • IRS Form 990
  • Resources for Your Journey
    • What Is Heart Valve Disease?
    • Understanding Your Echocardiogram Results
    • News & Insights
    • HVV US Patient Journey Report
  • Events
  • Advocacy
    • Patient Spotlight Series
    • Apply to Be a Patient Ambassador
    • Share Your Story
    • Become an Advocate
    • HVD Policy Task Force
    • #Ask4Echo Campaign
  • Join Our Community
    • Sign Up For Our Mailing List
    • My Valve. My Voice.

Archive

Yearly Archive for 2021

Home Blog2021

Heart Valve Voice US Praises Nomination Of Dr. Robert Califf as FDA Commissioner

Nov 12, 2021

Washington, DC/ November 12, 2021 — John Lewis, Executive Director of Heart Valve Voice US, issued the following statement regarding...

HVD Policy Task Force Comments on MCIT Repeal

Oct 18, 2021

Dear Administrator Brooks-LaSure: Heart Valve Voice US is submitting these comments on behalf of the Heart Valve Disease PolicyTask Force,...

7 Top TAVR Questions Answered By Someone Who’s Been Through It

Oct 7, 2021

One thing was certain immediately after my diagnosis of severe aortic stenosis (AS): I had questions! What exactly is aortic...

7 Ways to Make Life a Little Easier Before and After TAVR

Oct 7, 2021

When I first learned I had severe aortic stenosis and the only treatment was a heart valve replacement, I was...

I Was Told I Was Too Young for TAVR. Here’s Why I’m Glad I Pushed Back.

Oct 7, 2021

I was only 49 when I was diagnosed with severe aortic stenosis, a condition where the aortic valve doesn’t open...

Life After TAVR: Managing Uncertainty About My Valve’s Future

Oct 7, 2021

As a younger person living with valvular heart disease, I’ve learned to think of my aortic stenosis (AS) as a...

Comments on Cures 2.0 Discussion Draft

Jul 26, 2021

Honorable Diana DeGetteHonorable Fred Upton Comments on Cures 2.0 Discussion Draft Dear Representatives DeGette and Upton: Thank you for your...

#JustGo Campaign PSA Encourages Heart Valve Patients To Follow Up on Care

Jun 15, 2021

WASHINGTON, DC- Because of the Covid-19 pandemic, many heart valve patients have been unable or unwilling to follow up on...

Medicare Program; Medicare Coverage of Innovative Technology (MCIT) and Definition of “Reasonable and Necessary”; Delay of Effective Date (Docket No. CMS-2021-05490)

Apr 20, 2021

The Heart Valve Disease Policy Task Force represents a diverse group of patient,disease, and research advocacy groups with a shared...

HVVUS Urges Anthem To Revise Coverage Policies

HVVUS Urges Anthem To Revise Coverage Policies

Jan 26, 2021

Heart Valve Voice US is a patient advocacy organization focused on improving the diagnosis, management and treatment of heart valve...

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