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Heart Valve Voice USHeart Valve Voice US
  • About Us
    • Leadership
    • Our Supporters
    • IRS Form 990
  • Resources for Your Journey
    • What Is Heart Valve Disease?
    • Understanding Your Echocardiogram Results
    • News & Insights
    • HVV US Patient Journey Report
  • Events
  • Advocacy
    • Patient Spotlight Series
    • Apply to Be a Patient Ambassador
    • Share Your Story
    • Become an Advocate
    • HVD Policy Task Force
    • #Ask4Echo Campaign
  • Join Our Community
    • Sign Up For Our Mailing List
    • My Valve. My Voice.

Blog - Small Layout

Home Blog – Small
Christine Rekash

Christine Rekash

Can you share your experience with heart valve disease? I am a survivor of heart valve disease. My journey began...

April 28, 2025 Patient Spotlight
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Meghan Holmes

Meghan Holmes

Can you share your experience with heart valve disease? I was born with a unicuspid aortic valve defect. The murmur...

April 9, 2025 Patient Spotlight
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Tina Sampath

Tina Sampath

Can you share your experience with heart valve disease?   I was diagnosed with mitral valve prolapse as a teenager; however...

February 27, 2025 Patient Spotlight
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Teresa Wright-Johnson

Teresa Wright-Johnson

Can you share your experience with heart valve disease? I was born with a heart murmur, and my parents quickly...

February 27, 2025 Patient Spotlight
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Heart Valve Voice US and Alliance for Aging Research Partner to Support Heart Valve Disease Awareness Day

Heart Valve Voice-US is partnering with the Alliance for Aging Research for Heart Valve Disease Awareness Day, an initiative dedicated...

February 21, 2025 Press Release
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Heart Valve Voice – US Announces New Chairwoman of the Board

Heart Valve Voice – US Announces New Chairwoman of the Board

Washington, DC – Heart Valve Voice-US announced today that Teresa Wright-Johnson will assume the role of Chair of the Board...

February 18, 2025 Press Release
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Katherine “Kathi” Sapp

Katherine “Kathi” Sapp

Can you share your experience with heart valve disease?  I had little knowledge about heart valve disease until May 2021,...

February 3, 2025 Patient Spotlight
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Boots Knighton

Boots Knighton

Can you share your experience with heart valve disease? I was quite surprised by the diagnosis of a bicuspid aortic...

December 3, 2024 Patient Spotlight
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Pete Johnson

Pete Johnson

Can you share your experience with heart valve disease? It all started with what I thought was a routine check-up....

October 17, 2024 Patient Spotlight
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Heart Valve Voice-US Announces New Executive Director

WASHINGTON – Heart Halve Voice-US announced today that Karissa Charles will assume the role of Executive Director. Karissa’s nearly 10...

October 7, 2024 Press Release
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