Can you share your experience with heart valve disease?
A couple of years ago, I received a mechanical valve in my heart, as well as a pacemaker. I was born with an abnormal heart valve and developed symptoms at age 42. I notified my doctor, and a test was ordered, and then I received my mechanical valve shortly afterwards. Four days later, I developed a heart blockage. My doctor informed my family that I would need a pacemaker to help my heart function. A year later, I had my third surgery took place and received my pacemaker revision. My fourth surgery took place in December 2015, and I received new batteries in my pacemaker. I cope with valve disease daily by relying on my faith in God, as well as the support I receive from my loving husband, beautiful children, family, neighbors, church community friends, and medical team. I am a 15-year heart valve disease survivor and I’m so grateful.
What encouraged you to become a patient advocate?
After my third surgery, I decided to give back to my community by sharing my patient experience with cardiac patients. I am totally committed to raising awareness about valve disease, and helping patients and caregivers maintain a positive outlook on life.
How did you become involved with Heart Valve Voice US, as well as other heart health advocacy organizations?
I became involved with Heart Valve Voice US and My Valve My Voice through a recommendation of a friend and fellow heart survivor. I also volunteer with the American Heart Association (14 years of service). In February 2024, I shared my journey at “Live to the Beat”, a self-care celebration in Atlanta, Georgia and I am also a member of the “Live to the Beat” Ambassador program.
Why do you think it is important for other patients living with heart valve disease to share their story?
It is important to share because so many people need support and encouragement.
In your opinion, what can patients, health professionals, and advocacy groups do to continue raising awareness about valve disease?
In my opinion, patients can raise awareness by sharing their personal journey with valve disease, as well as educate family and friends. Health care professionals and advocacy groups can continue to provide educational resources for patients and opportunities for support.
What is one fun fact that others may not know about you?
I love listening to smooth jazz music, visiting waterfalls in my local community and spending quality time with my beautiful family and amazing friends.
