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Heart Valve Voice USHeart Valve Voice US
  • About Us
    • Leadership
    • Our Supporters
    • IRS Form 990
  • Resources for Your Journey
    • What Is Heart Valve Disease?
  • News & Insights
  • Policy Center
    • HVD Policy Task Force
  • Join Our Community
    • Sign Up For Our Mailing List
    • My Valve. My Voice.

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Heart Valve Voice US Announces Major Initiatives for Valve Disease Day Including My Valve My Voice Community App, Caregiver Event

WASHINGTON, DC – February 15, 2022 – Heart Valve Voice US, a nonprofit patient advocacy organization, is launching a new...

February 15, 2022 Press Release
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Heart Valve Voice US Praises Nomination Of Dr. Robert Califf as FDA Commissioner

Washington, DC/ November 12, 2021 — John Lewis, Executive Director of Heart Valve Voice US, issued the following statement regarding...

November 12, 2021 Press Release
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HVD Policy Task Force Comments on MCIT Repeal

Dear Administrator Brooks-LaSure: Heart Valve Voice US is submitting these comments on behalf of the Heart Valve Disease PolicyTask Force,...

October 18, 2021 Comment Letter, Policy Center
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7 Top TAVR Questions Answered By Someone Who’s Been Through It

One thing was certain immediately after my diagnosis of severe aortic stenosis (AS): I had questions! What exactly is aortic...

October 7, 2021 Blog, Patient Stories
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7 Ways to Make Life a Little Easier Before and After TAVR

When I first learned I had severe aortic stenosis and the only treatment was a heart valve replacement, I was...

October 7, 2021 Blog, Patient Stories
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I Was Told I Was Too Young for TAVR. Here’s Why I’m Glad I Pushed Back.

I was only 49 when I was diagnosed with severe aortic stenosis, a condition where the aortic valve doesn’t open...

October 7, 2021 Blog, Patient Stories
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Life After TAVR: Managing Uncertainty About My Valve’s Future

As a younger person living with valvular heart disease, I’ve learned to think of my aortic stenosis (AS) as a...

October 7, 2021 Blog, Patient Stories
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Comments on Cures 2.0 Discussion Draft

Honorable Diana DeGetteHonorable Fred Upton Comments on Cures 2.0 Discussion Draft Dear Representatives DeGette and Upton: Thank you for your...

July 26, 2021 Policy Center, Policy Statement
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#JustGo Campaign PSA Encourages Heart Valve Patients To Follow Up on Care

WASHINGTON, DC- Because of the Covid-19 pandemic, many heart valve patients have been unable or unwilling to follow up on...

June 15, 2021 Press Release, Resource Library
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Medicare Program; Medicare Coverage of Innovative Technology (MCIT) and Definition of “Reasonable and Necessary”; Delay of Effective Date (Docket No. CMS-2021-05490)

The Heart Valve Disease Policy Task Force represents a diverse group of patient,disease, and research advocacy groups with a shared...

April 20, 2021 Policy Center, Policy Statement
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Most Commented Posts

  • Involving Patients in Healthcare Research By ptobin@pennquarterpartners.com on February 5, 2018 0
  • Patient Perspective: Natalie’s Story (Gaithersburg, Maryland) By Karl Eisenhower on November 12, 2018 0
  • New Developments Expected in 2019 for Minimally Invasive Valve Treatments By Karl Eisenhower on January 3, 2019 0

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Most Liked Posts

  • Covid-19: Advice for individuals with Heart Valve Disease By Jacqueline on March 23, 2020 12
  • Guidance for Patients Regarding Elective Procedures By Jacqueline on April 24, 2020 4
  • Patient Perspective: Natalie’s Story (Gaithersburg, Maryland) By Karl Eisenhower on November 12, 2018 3

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Aortic Stenosis Aortic Valve Bicuspid Valve Clinical Trial CMS Covid-19 MCIT Mitral Valve Patient Resource Research Spanish Symptoms TAVR Technology Treatments

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