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Heart Valve Voice USHeart Valve Voice US
  • About Us
    • Leadership
    • Our Supporters
    • IRS Form 990
  • Resources for Your Journey
    • What Is Heart Valve Disease?
    • Understanding Your Echocardiogram Results
    • News & Insights
    • HVV US Patient Journey Report
  • Events
  • Advocacy
    • Patient Spotlight Series
    • Apply to Be a Patient Ambassador
    • Share Your Story
    • Become an Advocate
    • HVD Policy Task Force
    • #Ask4Echo Campaign
  • Join Our Community
    • Sign Up For Our Mailing List
    • My Valve. My Voice.

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Heart Valve Voice Returns, Renewed and Serving Patients Once Again

WASHINGTON, DC – Heart Valve Voice-US (HVV-US), the nation’s leading nonprofit dedicated to supporting and advocating for patients with heart...

September 8, 2023 Press Release
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HVV Comments on Medicare Program; Transitional Coverage for Emerging Technologies

Heart Valve Voice submitted the following letter to CMS in response to their request for comments regarding their procedure used...

August 31, 2023 Press Release
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Heart Valve Voice US Announces Major Initiatives for Valve Disease Day Including My Valve My Voice Community App, Caregiver Event

WASHINGTON, DC – February 15, 2022 – Heart Valve Voice US, a nonprofit patient advocacy organization, is launching a new...

February 15, 2022 Press Release
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Heart Valve Voice US Praises Nomination Of Dr. Robert Califf as FDA Commissioner

Washington, DC/ November 12, 2021 — John Lewis, Executive Director of Heart Valve Voice US, issued the following statement regarding...

November 12, 2021 Press Release
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HVD Policy Task Force Comments on MCIT Repeal

Dear Administrator Brooks-LaSure: Heart Valve Voice US is submitting these comments on behalf of the Heart Valve Disease PolicyTask Force,...

October 18, 2021 Comment Letter, Policy Center
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7 Top TAVR Questions Answered By Someone Who’s Been Through It

One thing was certain immediately after my diagnosis of severe aortic stenosis (AS): I had questions! What exactly is aortic...

October 7, 2021 Blog, Patient Stories
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7 Ways to Make Life a Little Easier Before and After TAVR

When I first learned I had severe aortic stenosis and the only treatment was a heart valve replacement, I was...

October 7, 2021 Blog, Patient Stories
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I Was Told I Was Too Young for TAVR. Here’s Why I’m Glad I Pushed Back.

I was only 49 when I was diagnosed with severe aortic stenosis, a condition where the aortic valve doesn’t open...

October 7, 2021 Blog, Patient Stories
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Life After TAVR: Managing Uncertainty About My Valve’s Future

As a younger person living with valvular heart disease, I’ve learned to think of my aortic stenosis (AS) as a...

October 7, 2021 Blog, Patient Stories
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Comments on Cures 2.0 Discussion Draft

Honorable Diana DeGetteHonorable Fred Upton Comments on Cures 2.0 Discussion Draft Dear Representatives DeGette and Upton: Thank you for your...

July 26, 2021 Policy Center, Policy Statement
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Aortic Stenosis Aortic Valve Bicuspid Valve Clinical Trial CMS Covid-19 MCIT Mitral Valve Patient Resource Research Spanish Symptoms TAVR Technology Treatments

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