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Heart Valve Voice USHeart Valve Voice US
  • About Us
    • Leadership
    • Our Supporters
    • IRS Form 990
  • Resources for Your Journey
    • What Is Heart Valve Disease?
    • Understanding Your Echocardiogram Results
    • News & Insights
    • HVV US Patient Journey Report
  • Events
  • Advocacy
    • Patient Spotlight Series
    • Apply to Be a Patient Ambassador
    • Share Your Story
    • Become an Advocate
    • HVD Policy Task Force
    • #Ask4Echo Campaign
  • Join Our Community
    • Sign Up For Our Mailing List
    • My Valve. My Voice.

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Mary Burrell

Mary Burrell

Can you share your experience with heart valve disease? My journey has been a wild ride of health challenges spanning...

September 23, 2024 Patient Spotlight
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Kimberly Goodloe

Kimberly Goodloe

Can you share your experience with heart valve disease? A couple of years ago, I received a mechanical valve in my...

August 23, 2024 Patient Spotlight
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Robyn Peacock

Robyn Peacock

Can you share your experience with heart valve disease? In the Spring of 2007, my bicuspid aortic valve and an...

August 6, 2024 Patient Spotlight
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Comment on CMS Coverage Policy for Transcatheter Tricuspid Valve Repair – TTVR

Dear Administrator Brooks-LaSure, As members of the Heart Valve Disease Policy Task Force, a national group of 30 leaders including...

July 24, 2024 Comment Letter, Policy Center
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HVV-US Joins 28 Organizations on Letter to Administration about CED Language in White House Initiative

Heart Valve Voice US joined Society for Women’s Health Research and 27 organizations on letter to the Centers for Medicare...

June 14, 2024 Comment Letter, Policy Center
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HVD Policy Task Force Comments on FDA’s Review of the PMA for the TriClip G4 System

Dear Dr. Awojope and members of the Circulatory System Devices Panel of the Medical Devices Advisory Committee, While signatories to...

February 7, 2024 Comment Letter, Policy Center
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Heart Valve Voice Returns, Renewed and Serving Patients Once Again

WASHINGTON, DC – Heart Valve Voice-US (HVV-US), the nation’s leading nonprofit dedicated to supporting and advocating for patients with heart...

September 8, 2023 Press Release
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HVV Comments on Medicare Program; Transitional Coverage for Emerging Technologies

Heart Valve Voice submitted the following letter to CMS in response to their request for comments regarding their procedure used...

August 31, 2023 Press Release
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Heart Valve Voice US Announces Major Initiatives for Valve Disease Day Including My Valve My Voice Community App, Caregiver Event

WASHINGTON, DC – February 15, 2022 – Heart Valve Voice US, a nonprofit patient advocacy organization, is launching a new...

February 15, 2022 Press Release
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Heart Valve Voice US Praises Nomination Of Dr. Robert Califf as FDA Commissioner

Washington, DC/ November 12, 2021 — John Lewis, Executive Director of Heart Valve Voice US, issued the following statement regarding...

November 12, 2021 Press Release
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