• About Us
    • Leadership
    • Our Supporters
    • IRS Form 990
  • Resources for Your Journey
    • What Is Heart Valve Disease?
    • Understanding Your Echocardiogram Results
    • News & Insights
    • HVV US Patient Journey Report
  • Events
  • Advocacy
    • Patient Spotlight Series
    • Apply to Be a Patient Ambassador
    • Share Your Story
    • Become an Advocate
    • HVD Policy Task Force
    • #Ask4Echo Campaign
  • Join Our Community
    • Sign Up For Our Mailing List
    • My Valve. My Voice.
Heart Valve Voice USHeart Valve Voice US
  • About Us
    • Leadership
    • Our Supporters
    • IRS Form 990
  • Resources for Your Journey
    • What Is Heart Valve Disease?
    • Understanding Your Echocardiogram Results
    • News & Insights
    • HVV US Patient Journey Report
  • Events
  • Advocacy
    • Patient Spotlight Series
    • Apply to Be a Patient Ambassador
    • Share Your Story
    • Become an Advocate
    • HVD Policy Task Force
    • #Ask4Echo Campaign
  • Join Our Community
    • Sign Up For Our Mailing List
    • My Valve. My Voice.

Blog - Small Layout

Home Blog Small – Left Sidebar (Page 2)
Boots Knighton

Boots Knighton

Can you share your experience with heart valve disease? I was quite surprised by the diagnosis of a bicuspid aortic...

December 3, 2024 Patient Spotlight
Read More

Heart Valve Disease Policy Task Force Submitted Letter to CMS Thanking the Opportunity to Comment on the NCA Tracking Sheet About the TriClip

Dear Administrator Brooks-LaSure, As members of the Heart Valve Disease Policy Task Force, a national group of 30 leaders including...

November 12, 2024 Comment Letter, Policy Center
Read More
Pete Johnson

Pete Johnson

Can you share your experience with heart valve disease? It all started with what I thought was a routine check-up....

October 17, 2024 Patient Spotlight
Read More

Heart Valve Voice-US Announces New Executive Director

WASHINGTON – Heart Halve Voice-US announced today that Karissa Charles will assume the role of Executive Director. Karissa’s nearly 10...

October 7, 2024 Press Release
Read More
Mary Burrell

Mary Burrell

Can you share your experience with heart valve disease? My journey has been a wild ride of health challenges spanning...

September 23, 2024 Patient Spotlight
Read More
Kimberly Goodloe

Kimberly Goodloe

Can you share your experience with heart valve disease? A couple of years ago, I received a mechanical valve in my...

August 23, 2024 Patient Spotlight
Read More
Robyn Peacock

Robyn Peacock

Can you share your experience with heart valve disease? In the Spring of 2007, my bicuspid aortic valve and an...

August 6, 2024 Patient Spotlight
Read More

Comment on CMS Coverage Policy for Transcatheter Tricuspid Valve Repair – TTVR

Dear Administrator Brooks-LaSure, As members of the Heart Valve Disease Policy Task Force, a national group of 30 leaders including...

July 24, 2024 Comment Letter, Policy Center
Read More

HVV-US Joins 28 Organizations on Letter to Administration about CED Language in White House Initiative

Heart Valve Voice US joined Society for Women’s Health Research and 27 organizations on letter to the Centers for Medicare...

June 14, 2024 Comment Letter, Policy Center
Read More

HVD Policy Task Force Comments on FDA’s Review of the PMA for the TriClip G4 System

Dear Dr. Awojope and members of the Circulatory System Devices Panel of the Medical Devices Advisory Committee, While signatories to...

February 7, 2024 Comment Letter, Policy Center
Read More
  • 1
  • 2
  • 3
  • …
  • 6
  • 7

Tag Cloud

Aortic Stenosis Aortic Valve Bicuspid Valve Clinical Trial CMS Covid-19 MCIT Mitral Valve Patient Resource Research Spanish Symptoms TAVR Technology Treatments

Contact Us

Please contact us with any questions or to get involved.

Send Message
Join the My Valve My Voice patient community Download the app
Sign Up for Our Mailing List
  • facebook
  • x
  • linkedin

© · Heart Valve Voice

Terms of Use
Privacy Policy

Website Management provided by Genacom

Contact Info

  • Heart Valve Voice US
  • 100 M Street SE 600 Washington, DC 20003
  • info@heartvalvevoice-us.org
  • https://www.heartvalvevoice-us.org