• About Us
    • Leadership
    • Our Supporters
    • IRS Form 990
  • Resources for Your Journey
    • What Is Heart Valve Disease?
    • Understanding Your Echocardiogram Results
    • News & Insights
    • HVV US Patient Journey Report
  • Events
  • Advocacy
    • Patient Spotlight Series
    • Apply to Be a Patient Ambassador
    • Share Your Story
    • Become an Advocate
    • HVD Policy Task Force
    • #Ask4Echo Campaign
  • Join Our Community
    • Sign Up For Our Mailing List
    • My Valve. My Voice.
Heart Valve Voice USHeart Valve Voice US
  • About Us
    • Leadership
    • Our Supporters
    • IRS Form 990
  • Resources for Your Journey
    • What Is Heart Valve Disease?
    • Understanding Your Echocardiogram Results
    • News & Insights
    • HVV US Patient Journey Report
  • Events
  • Advocacy
    • Patient Spotlight Series
    • Apply to Be a Patient Ambassador
    • Share Your Story
    • Become an Advocate
    • HVD Policy Task Force
    • #Ask4Echo Campaign
  • Join Our Community
    • Sign Up For Our Mailing List
    • My Valve. My Voice.

Resource Library

Home Resource Library

Heart Valve Voice US and Alliance for Aging Research Partner to Support Heart Valve Disease Awareness Day

Feb 21, 2025

Heart Valve Voice-US is partnering with the Alliance for Aging Research for Heart Valve Disease Awareness Day, an initiative dedicated...

Heart Valve Voice – US Announces New Chairwoman of the Board

Heart Valve Voice – US Announces New Chairwoman of the Board

Feb 18, 2025

Washington, DC – Heart Valve Voice-US announced today that Teresa Wright-Johnson will assume the role of Chair of the Board...

Heart Valve Voice-US Announces New Executive Director

Oct 7, 2024

WASHINGTON – Heart Halve Voice-US announced today that Karissa Charles will assume the role of Executive Director. Karissa’s nearly 10...

Heart Valve Voice Returns, Renewed and Serving Patients Once Again

Sep 8, 2023

WASHINGTON, DC – Heart Valve Voice-US (HVV-US), the nation’s leading nonprofit dedicated to supporting and advocating for patients with heart...

HVV Comments on Medicare Program; Transitional Coverage for Emerging Technologies

Aug 31, 2023

Heart Valve Voice submitted the following letter to CMS in response to their request for comments regarding their procedure used...

Heart Valve Voice US Announces Major Initiatives for Valve Disease Day Including My Valve My Voice Community App, Caregiver Event

Feb 15, 2022

WASHINGTON, DC – February 15, 2022 – Heart Valve Voice US, a nonprofit patient advocacy organization, is launching a new...

Heart Valve Voice US Praises Nomination Of Dr. Robert Califf as FDA Commissioner

Nov 12, 2021

Washington, DC/ November 12, 2021 — John Lewis, Executive Director of Heart Valve Voice US, issued the following statement regarding...

7 Top TAVR Questions Answered By Someone Who’s Been Through It

Oct 7, 2021

One thing was certain immediately after my diagnosis of severe aortic stenosis (AS): I had questions! What exactly is aortic...

7 Ways to Make Life a Little Easier Before and After TAVR

Oct 7, 2021

When I first learned I had severe aortic stenosis and the only treatment was a heart valve replacement, I was...

I Was Told I Was Too Young for TAVR. Here’s Why I’m Glad I Pushed Back.

Oct 7, 2021

I was only 49 when I was diagnosed with severe aortic stenosis, a condition where the aortic valve doesn’t open...

  • 1
  • 2
  • 3

Contact Us

Please contact us with any questions or to get involved.

Send Message
Join the My Valve My Voice patient community Download the app
Sign Up for Our Mailing List
  • facebook
  • x
  • linkedin

© · Heart Valve Voice

Terms of Use
Privacy Policy

Website Management provided by Genacom

Contact Info

  • Heart Valve Voice US
  • 100 M Street SE 600 Washington, DC 20003
  • info@heartvalvevoice-us.org
  • https://www.heartvalvevoice-us.org